Thursday, December 22, 2011

My Personal Connection to Children with Prader-Willi Syndrome

Pediatric Dentistry of Garden City
516-222-5100 

If you haven’t already heard, this holiday season Dr. Stacey Reynolds and everyone at Pediatric Dentistry of Garden City are going to give a very special gift to a very special cause for children with Prader-Willi Syndrome.

As a pediatric dentist who treats children with special needs, I have a huge place in my heart for children with special needs. Children with Prader-Willi Syndrome, specifically, are particularly important to me.

Not too long ago, a child very close to me (whose family wishes to remain anonymous) was diagnosed with Prader-Willi Syndrome. I have known him since birth and have watched him grow to be a loving, caring, fun and silly child.

I have seen what early intervention can do for children with PWS.  He has had PT and OT since several weeks’ old, speech since he was a toddler, and has attended a special school since he was 2 years old.  Had all of these services not been available to him since his early diagnosis, I am certain he would not be as advanced as he is today in his everyday tasks.

I anticipate the difficulties he will face as he goes through elementary school considering almost all children with Prader-Willi Syndrome have learning disabilities, social deficits and motor insufficiencies.

His dietary challenges haven't surfaced as of yet but we know this is inevitable.  I strongly believe that all of the information that his family received before he was even 2 months old has helped them cope tremendously. 

The power of prevention and knowledge of what lies ahead is astounding.

This is one of the reasons why raising funds and more importantly awareness to the Prader-Willi Syndrome is a goal that’s very important to me, my family and friends. I would like everyone to understand what the syndrome consists of and just how hard it is for families and children to cope with.

Not enough people are familiar with the syndrome and turn their heads to the chronic issue. Please help me raise awareness for the Prader-Willi Syndrome.

Do you know someone who has been affected by the Prader-Willi Syndrome? Tell us your story so we can share it on our blog and Facebook.

From everyone here at Pediatric Dentistry of Garden City, we wish you, your family and friends a Happy & Healthy Holiday.

2 comments:

  1. Thank you. I have a 10-year-old daughter with PWS. She has had major dental work and we are fortunate to have a very good children's dental clinic here in Lawton, OK. I appreciate your work with our kids and their teeth and your generosity, making a donation to PWSA USA. This organization is a real lifesaver.

    ReplyDelete
  2. It is important to take care of your children's oral health. So parents should make sure that sweets are limited in the child's diet to help prevent the child's teeth from decaying. This will help the child have a healthier diet and stronger teeth. The more queries about your child's oral health can be solved by consulting with an expert pediatric dentist. They will explain the various stages in which children's teeth develop. It is usually recommended that people visit the oral care provider every six months. Choosing best kids dentist is an important part of their overall welfare. The dentist will be one of their best friends throughout their young lives.


    Kids Dentist San Diego

    ReplyDelete